Funds being gathered right now will be used in part to pay for facilities and materials at the annual 1p36 Deletion Conference in Boston in September. The conference will be a great opportunity to meet with doctors and other care givers and learn what we can all do help our loved ones who are affected by this genetic condition.
The fund has no administrative overhead due to the fact that it is run by volunteers whose families are affected by 1p36 Deletion Syndrome. That means every penny donated goes to help 1p36 patients.
If you would like to make a tax deductible donation to the 1p36 Deletion Syndrome Fund or would like an information packet so you could assist in raising funds, please send me an email at nate (dot) hanson (at) gmail (dot) com. I'll get you all the specifics you need to make a contribution or assist the fund in collecting contributions in your area. And thank you in advance for your help in spreading the word about this syndrome and helping those being treated for it.