Monday, August 02, 2010

Annual 1p36 Deletion Support & Awareness Conference

The family had a great weekend at the annual conference for 1p36 Deletion families and caregivers. There were some excellent speakers and activities. I've got quite a few pictures and notes to share, so I'll be posting them over the next few days.

The conference this year was hosted here in my home town of Salt Lake City, Utah. Thanks to all of those who attended. It's the families who come that make an event like this a success and we had nearly 30 families attend. Thanks also, to the great care givers, researchers, therapists and others who shared their knowledge. A big thank you to Rachel Coleman for her performance and inspiration. And thanks to the great folks at the Downtown SLC Marriott for taking such good care of us all weekend.

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