Friday, July 31, 2009

1p36 Deletion Support and Awareness Conference is Under Way!

Whitney, Liam, Melanie and I arrived in Indianapolis, Indiana this evening along with Whit's grandparents to attend the third annual 1p36 Deletion Support & Awareness Conference. Things kicked off with registration and a parents session. There was some great Q&A time with different 1p36 family members representing parents, patients, siblings, etc. each fielding questions from others.

Tomorrow is a full docket of speakers followed by a movie and pool party in the evening. I'll try to post summaries of the sessions right here for those interested.

Already it's been fun to see members of our 1p36 family that we haven't been with since last year in Boston. When you don't see these amazing little ones for almost a year, it's shocking to see the progress they make while we're apart. So many are sitting up, taking steps, saying words and showing us other miracles, when they couldn't only a year ago. It's truly inspiring!

(In the photo, Tabitha and Whitney relaxing during the family Q&A.)

No comments: