Wednesday, December 24, 2008

New 1p36 Deletion Syndrome Forum

Christina, one of the moderators of the 1p36 Deletion Syndrome Yahoo! Group, has been working hard to create a new forum for our support group. The new forum has many benefits over the Yahoo! Group because parents can discuss multiple topics in the different areas of the forum without overwhelming everyone with emails. Overwhelming email amounts has been a big problem as our Yahoo! Group has grown. However, if you still prefer to receive emails you can subscribe to different topics in the forums and when someone posts you'll get an email just like on Yahoo! We also have the ability to have live chats on the new forum. And we can add photos and videos right inside of our posts. These new message boards should also be able to handle the increasing size of our 1p36 family. There's room for everyone!

The address for the new message boards is and you can sign up now. Just follow the link and create an account. To verify that only people with ties to the support group become members, Christina may send you a confirmation email and then you'll be able to start sharing with other members.

Thanks, Christina, for all your hard work. And I look forward to chatting with all of you on the new message boards.


Susan said...

I came across your blog last night while looking for information on hatchback shoes to go with DAFO braces(your 2007 post came up) and ended up reading some of your entries about your experiences with your daughter, Whitney. She is a beautiful child and really an inspiration. I have been feeling a bit overwhelmed lately with our situation and found strength in reading your words. Thanks! All the best as you continue to work with Whitney---she truly is one of our Heavenly Father's special spirits!

Nate said...

This page gets a lot of views and the forum I linked to isn't being used anymore. I want to make sure people who visit know where to find other 1p36 parents. These days you can find a great group on Facebook. Just search for 1p36 Deletion Syndrome Support & Awareness or visit See you there!