Monday, September 08, 2008

1p36 Deletion Conference Agenda

Excitement is reaching fever pitch for this year's 1p36 Deletion Conference in Boston Massachusetts.  At last count there will be about 20 different families in attendance.  Here's a glance at what will be taking place:

Day 1 – Friday September 12th, 2008

6:00pm – 7:00pm Conference Registration - Conference Check-in, Conference Information Packets

6:00pm – 8:00pm Meet & Greet - Get to know the attending families

Day 2 – Saturday September 13th, 2008

8:00am - 9:00am Welcome & Introductions - Group Photo

9:00am - 10:30am Session 1: Lessons Learned in Creating and Running the Chromosome 18 Registry Presentation & Questions - Dr. Cody

10:30am - 10:45am Break

10:45am - 12:00pm Session 2: Clinical features of 1p36 & General Cytogenetics Presentation & Questions - Dr. Shaffer

12:15pm - 2:00pm Lunch / Break 

2:00pm – 3:30pm Session 3: 1p36 Study & Growth Charts Presentation & Questions - Dr Perszyk

3:30pm - 3:45pm Break

3:45pm – 4:45pm Session 4: Family Stories Share your family story with the group

4:45pm - 5:30pm Session 5: Next Conference / Committee / Outreach / Website / Fundraising

DAY 3 – Sunday September 14, 2008

8:00am – 9:00am Meet for Breakfast (Informal)

9:00am Family Activity

Thanks to Kate and Karen for all the hard work in getting this year's conference organized.  Stay close for all kinds of pictures and recaps of the sessions from this year's conference.


Kajsa Farnsworth said...

Have fun at the conference! We weren't able to pull things together as planned so we aren't attending. We're looking forward to your photos and updates.

Nate said...

Kajsa, we'll miss you in Boston. Please let us know next time you're in town. We'd love to get together and hang out again!

Angie said...

Okay Nate and are my eyes and ears at the conference! I wish we were going, but count us in for sure on the next one. I will be looking forward to the updates of information and to see what is happening. Please enjoy the conference, have a safe trip, and give hugs to everyone for us. Thank again for your kind words on Alayna's blog. Just knowing I have a 1p36 family where "we are all in this together" makes the world of difference.

Hugs to Whitney and I'm sure little Liam will miss you guys :(

Kajsa Farnsworth said...

Well, we are going to Utah... during the conference! Bad timing, huh? I am sure we will be around at Christmas again so we'll have to get together again. Have fun in Boston!