Current information about 1p36 Deletion Syndrome indicates that my daughter my have trouble with her eyesight. So around 18 months we took her for her first eye exam. The doctor told us that her eyes appeared perfectly healthy and that her vision was normal for an 18 month old. My wife and I were glad to hear that good news and hadn't given vision much more thought.
Until about a month ago. I've begun to notice that my daughter's eyes don't seem to point the same direction when she looks at me. It comes off as looking vaguely cross-eyed. My wife, ever the observant one, noticed this first, and thought to ask the physical therapist about it. The therapist was interested and asked if the cross-eyedness gets better or worse when my daughter's well rested or tired. So I've been watching to see if there's a difference. I really can't tell if there is or not.
So I guess it's back to the eye doctor. We've already set up the appointment. But I wonder if this is some sort of lazy eye thing or if there are deeper neurological issues lurking beneath this symptom. So have other 1p36 parents seen this? The pictures of kids I've seen in medical books do seem to have a mild cross-eyed look to them. Maybe this is the result of my daughter's eyes being placed so close together? As usual, I have more questions than answers, but as soon as I get some answers, I'll post them here.