tag:blogger.com,1999:blog-14286916.post115013860762620814..comments2023-05-13T08:54:22.864-06:00Comments on Adventures in Raising a Disabled Child: Signing UpdateNatehttp://www.blogger.com/profile/17394193811848413412noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-14286916.post-1150915879214799802006-06-21T12:51:00.000-06:002006-06-21T12:51:00.000-06:00Yup my wife is a stay-at-home mom and a hard worki...Yup my wife is a stay-at-home mom and a hard working one at that. (For the record, I could never do what she does all day.) Anyway, she does indeed enjoy email and all that. I've mentioned you'd like to swap stories and such so I suspect you'll hear from her when she gets a free moment. Hope all is well!<BR/><BR/>NateNatehttps://www.blogger.com/profile/17394193811848413412noreply@blogger.comtag:blogger.com,1999:blog-14286916.post-1150304105108836352006-06-14T10:55:00.000-06:002006-06-14T10:55:00.000-06:00Very interesting. EK has not failed a hearing test...Very interesting. EK has not failed a hearing test yet -- though all the 'inconclusives' get frustrating! She got tubes in her ears at 12mos, and "passed" her first test after all the fluid cleared. But, I found out after they ran the test that they had not tested for high frequencies, which (from reading) I've learned are the first ones to go in 1p36'ers, if they do degenerate. So, I guess we aren't on a list as of yet, and so are on the 'outside'. <BR/><BR/>I was hoping it would be simpler to receive services like that, since we already know it is likely she will be non-verbal; my opinion is, why wait if we already have an idea it can help, and know it can't hurt!<BR/><BR/>I guess I will look into the local Deaf and Blind school -- its quite the challenge finding all of the resources that are out there!<BR/><BR/>(Speaking of finding resources: I just got a mail flyer this week about a meeting nearby here that is to help -- through the DDD -- to navigate all the systems and services available for Disabled children. We wanted to go to the last one, but it was scheduled for the day after my baby was born! Oops!)<BR/><BR/>Does your wife stay home with your little one? If she's an e-mail'y kind of person, you could let her know that I'd love to chat! My email is tulips (at) fluidnature (dot) com. <BR/><BR/>Anyway ... enough procrastinating... supposed to be packing for a quick weekend vacation!Anonymoushttps://www.blogger.com/profile/13441809988487585009noreply@blogger.comtag:blogger.com,1999:blog-14286916.post-1150294525430106292006-06-14T08:15:00.000-06:002006-06-14T08:15:00.000-06:00The deaf mentoring program is sponsored by the Uta...The deaf mentoring program is sponsored by the Utah School for the Deaf and Blind, which in turn is sponsored by state funding. They began to recieve information on my daughter when she failed all her hearing tests at birth. In Utah there's actually a state registry of all the children with hearing impairments. So the school contacted us about her hearing needs and started providing all kinds of services.<BR/><BR/>An audiologist started seeing her for regular hearing tests and they provided a pair of hearing aids on loan so we could see if they helped her. Then when she turned two we started making arrangements for signing lessons in our home. It's a great benefit that's provided to all kinds of children throughout the state and it's funded by tax dollars. <BR/><BR/>Depending on where you live there may be similar programs available to the public. Otherwise, like you've mentioned, private classes and care of this nature end up being a very expensive alternative.Natehttps://www.blogger.com/profile/17394193811848413412noreply@blogger.comtag:blogger.com,1999:blog-14286916.post-1150234401595261002006-06-13T15:33:00.000-06:002006-06-13T15:33:00.000-06:00So, how did you find a Deaf Mentor program? Was th...So, how did you find a Deaf Mentor program? Was that through the genetics group you work with, or some other resource? I've been looking for the past several weeks for any type of resource around here (as I'm getting more frustrated with the seeming lack of direction from EK's speech teachers), and all I ever find are 'Baby Sign' programs (not very useful if she is going to be relying on speaking with her hands for communication); and prohibitively expensive ASL programs.<BR/><BR/>What a wonderful opportunity you are having with your little one!<BR/><BR/><A HREF="http://tulips.fluidnature.com/index.php?cat=12" REL="nofollow">Rain on Tulips: 1p36 Category</A>Anonymoushttps://www.blogger.com/profile/13441809988487585009noreply@blogger.com